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I am new to this, anyone in Oregon USA? 7 years 7 months ago #23690

I am new to this site and anxious to hear from people who have navigated their recovery thru the trials.
I have been denied by my insurance company for drug because of a low fibrosis score.
I have recently survived a heart attack & bypass which was shocking as I am quite fit and use no
alcohol, drugs etc. So having dodged that bullet I feel curing Hep c is primary goal to keep health
going. I'm very stressed about this process and would appreciate any personal experience with
using this system for anyone in the USA or Oregon.
Thanks,
Sue
The following user(s) said Thank You: coral, Matt-Kenney-google

I am new to this, anyone in Oregon USA? 7 years 7 months ago #23691

  • Sven
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Greetings
You'll find very helpful and kind people here that will direct you to the right areas in the forum.
In my honest opinion treat now through the trials. Your GP or a GI will take your LFT's (liver function tests with viral loads). It's time to go forward now, even the $1500-2000 total is a lot you'll probably never get this chance again. We all don't know when trials will end too.
Good luck and treat now, you won't be sorry and you'll be HCV free before summer!
Contracted HCV 1980's
Geno Type 1a
F3 ( doc says once treated I'll be F2 maybe F1)
Meds shipped 6/17/2016 arrived early 7/2016

Viral count - 3,471,080

4 week quantitative bloods: August 17, 2016. I have been diagnosed as <15 (told undetected)

8 week quantitative bloods: September 14th. I have been diagnosed as <15 (told undetected)

11 week PCR RNA Qualitative bloods: September 26th 2016 - Undetected

December 19th 2016: Cured!
Viral count: zero!!!
2018 viral count: still zero!
Cured!
The following user(s) said Thank You: suealdredge

I am new to this, anyone in Oregon USA? 7 years 7 months ago #23692

Thank you sooo much for this vote of confidence.
Sue
The following user(s) said Thank You: Greedfighter

I am new to this, anyone in Oregon USA? 7 years 7 months ago #23749

Hi,
E mail me.
m
This email address is being protected from spambots. You need JavaScript enabled to view it.
forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
The following user(s) said Thank You: Greedfighter

I am new to this, anyone in Oregon USA? 7 years 7 months ago #23759

Hi Suealdredge,

If you have not already, I recommend you email mgalbrai for assistance.
Gt 1a, F0, VL 6.5 million, AST 59, ALT 62
Started Twinvir 1/15/16
6 wk. labs VL UND, AST 27, ALT 20
EOT labs VL UND, AST 23, ALT 19
SVR 16, VL UND, AST 28, ALT 17
SVR 24 , VL UND, 10/8/16
SVR 125, VL UND, 9/22/18
SVR 230, VL UND, 10/3/20

I am new to this, anyone in Oregon USA? 7 years 7 months ago #23773

Hello Sue, I'm in Oregon and I went forward with the e-trial. I'm now looking at svr 24 at the end of March. Mike, aka mgalbrai, will indeed be very helpful, (despite the fact that he's not an Oregonian).
GP2U & Monkmed can walk you through the process, it's pretty simple really. I encourage you the same as others, don't wait! You won't regret it.
Before you know it, you can be svr12 and cured!
All the best to you Sue,

Matt
GT1a; Got it some time in the 70's; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA "NOT DETECTED"
AS OF 3/20/2017 ,Hep C RNA PCR "NOT DETECTED" THAT'S SVR24!
The following user(s) said Thank You: Gaj, MonkMed, Greedfighter, Sven

I am new to this, anyone in Oregon USA? 7 years 6 months ago #23942

  • Fara
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Hi Sue, I am not in Oregon, but reside in US. I had a similar problem with insurance, and decided to take control of

my situation and get treatment myself. You can utilize the information on this site, sign up with redemption trials, and get an online appt.

with GP2U, & or Monkmed, get the RX and go from there. I had this disease for 35-40 yrs, and now after treatment I have SVR 24; 99.9%

cured. I would not wait on this as things are changing with the government & the new administration in US. Best wishes, Fara
HCV since 35-40yrs., GT 1a , Dx 2004; VL 4-5 mil, F2-3
Tx sof/led started 3/4/16
4wks VL <15
9 weeks VL UND, ; Alt-15,Ast-13
16 weeks VL UND Alt-20, Ast-22;
EOT 24 wks UND
SVR 4 UND
SVR 12 UND, Alt.15, Ast. 17
SVR 24 UND
The following user(s) said Thank You: DrJames, Gaj, MonkMed, Mnem

I am new to this, anyone in Oregon USA? 7 years 6 months ago #23960

  • doxner
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Hello Sue, I'm not from Oregon, but Switzerland, same state here with the insurance.
I started, after living with HepC for 30 years, with Panovir the 29th December 16, after the middle of the therapie already undetected, another 9 pills to go. This way changed a lot for me, changed everything, still hard to realise a life without the virus. Hope you can start very soon and I'm sure, the meds will help you...they are magical...you will see ;-)
I'm not an medical expert but I'm around if you need something ;-)
all the best, Denis
Genotype 1a, since 1990
Results 2009: ISHAK 2, METAVIR Score 1, Fibrose Stiffness 6.4 kPa
Results 20/12/2016: HCV RNA (2016) >10 Mio. / AST 60 / ALT 88 / GGT 248
Starting Therapy: 29/12/2016 with Panovir (Incepta, for 84 days)
Results 18/01/2017: CV RNA quant. PCR * < 10 / AST 23 / ALT 31 / GGT not tested
Results 02/02/2017: AST 25, ALT 38, GGT 54, HCV RNA UNDETECTED
The following user(s) said Thank You: DrJames, parvez, Gaj
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